Celebrate Every NF Win

By Melanie Rickmann On Tuesday, January 16, 2018

You all got time to hear this shit because I have good news! Sebastian does not have a...

Tension Headache or Tumor?

By Melanie Rickmann On Wednesday, January 10, 2018

Well Happy New Year! I sure hope your year has started off better than ours. It's been, well,...

Summer Summer Summertime

By Melanie Rickmann On Wednesday, August 02, 2017

  Holy crap it's August already! And I haven't posted anything in over a month! Isn't it amazing...

NF1: 4 Years Later

By Melanie Rickmann On Tuesday, December 20, 2016

This popped up on my Facebook memories on Dec 17th: Wow I don't believe it's been over 4 years...

Depression After Your Child's Diagnosis

By Melanie Rickmann On Tuesday, June 21, 2016

I have been seriously slacking on blog posts lately, but for a good reason. I've been working on...

Nobody Said It Was Easy

By Melanie Rickmann On Tuesday, May 31, 2016

Today I did a guest post over at my friend Kristen's blog, in honor of NF Awareness month. So...

My Gratitude for NF

By Melanie Rickmann On Tuesday, May 17, 2016

Today is World NF Awareness day. Neurofibromatosis (NF) is a neurological disorder caused by a mutation in the...

Perspective

By Melanie Rickmann On Friday, January 15, 2016

It's been a little over 3 years since we were told Sebastian likely had NF1. Since hearing this news,...

NF Awareness Day

By Melanie Rickmann On Sunday, May 17, 2015

Today is World NF (Neurofibromatosis) Awareness Day. Across the country, bridges and buildings will be lit up blue and...

Specialists Aren't So Special

By Melanie Rickmann On Tuesday, April 21, 2015

Last month we took Sebastian to the Providence Neurodevelopment Center. This is the place that books out over 6...

Super Fast Sebastian

By Melanie Rickmann On Thursday, January 29, 2015

Well you wouldn't know it from looking at my lack of posts, but my brain is constantly bursting with...

Things I never thought I'd say to my children...

By Melanie Rickmann On Friday, August 15, 2014

...keeping in mind Sebastian is not even 5 yet.... Eat your pizza so you can have ice cream. Quit...